We Built the Resource We Could Never Find: Welcome to About Lichen Planus
For years, we at the Lichen Sclerosus Support Network (LSSN) have received messages that all sounded surprisingly similar:
“Do you have anything about lichen planus?”
“I have lichen sclerosus… but my doctor now thinks I also have lichen planus.”
“I’ve searched everywhere. Is there a nonprofit that explains this in plain English?”
Too often, our answer was disappointing.
We had articles, podcasts, and expert interviews for lichen sclerosus. But we didn’t have a place we could confidently refer people living with lichen planus to.
That changes today.
We are proud to introduce About Lichen Planus, a new educational website created to help people living with one of the most misunderstood inflammatory conditions affecting the skin and mucous membranes.
Watch the Launch Announcement
If you’d rather hear the story directly from our team, watch our 7-minute launch announcement below. We share why we created About Lichen Planus, what you’ll find on the new site, and where we’re headed next as we expand support for people living with lichen planus.
In this video, you’ll learn:
Prefer reading? Visit our About Lichen Planus page
New here? Start with these resources:
What You’ll Find
Help Shape the Future of Lichen Planus Care
Stories inspire us, but data changes medical systems. Right now, there is a massive gap in documented data regarding the real barriers lichen planus patients face.
To change this, we are conducting a vital patient survey in partnership with an international pharmaceutical company. If you meet the following criteria, we need your voice:
The survey takes about 35 minutes and can be completed entirely anonymously. Your answers will help us show researchers and policymakers exactly where patients are falling through the cracks, helping us build better resources and stronger clinical trials for the future.
Jaclyn Lanthier,
LSSN Chief Research and Provider Education Officer
We believe the patient voice is the most powerful tool we have. If you are living with lichen planus and would be open to sharing your experience for a future video, educational project, or patient story, we would love to hear from you.
Every story shared is a lifeline that helps someone else feel less alone on their diagnosis journey.
If you are interested, please reach out to Jaclyn directly at:
jaclyn.lantheier@lssupportnetwork.org
Welcome to Our Community
We are still a very small team, but we have big missions and big dreams.
Whether you are living with lichen planus, lichen sclerosus, both conditions, or are still searching for answers, we are so glad you are here. Welcome to About Lichen Planus. We are honored to stand with you.
Get updates as we grow.
You shouldn’t have to navigate this condition alone. Join our community list to receive our latest patient resources, research insights, and be the first to hear about our upcoming LP Roadmap virtual summit in September.
Welcome. We’re glad you’re here.
While you’re waiting for your first email, explore these trusted resources:
We don’t offer miracle cures, but we do offer a path forward. You deserve to understand your body.
